Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)

Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)


you had to introduce you and your sister to the world what would you say Merton nobody special I think everyone’s we’re just like anyone else you know I mean do you want to be looked at as an inspiration I want to be looked at as an inspiration for doing things that are inspiring for anybody to do I think I might be a little more realistic well more realism like she’s she’s like the super positive person he’s seen like movies almost like work be grateful and I know I wish I could be that way yeah life is beautiful that every day to the fullest the other doesn’t motivational speaker it is true but like you know me I’m the same way but I’m also like you know in a brother right like no show come on it’s a Tuesday I’m tired like I got three hours of sleep it’s all you good night tonight okay we all we all get sad and I think that’s normal but I think one of my biggest things in like this it’s okay to be sad but don’t let it rise to all and just don’t worry and keep going welcome to SBS K join me as I travel around the world an interview an individual is living with a condition to prove no matter how you communicate or what obstacles you face you’re always deserving of love and acceptance so without hesitation let’s meet today’s friend the walls smarter than me and she’s a better person than me so I’ll have to give her much guidance for me it’s really I give her a lot of social guidance because you know being with a disability it’s hard it has been pretty amazing to have him cuz he has gone through some of the same things as me you know and I think it is amazing that we could relate to things especially now that I’m in high school and he’d just graduated high school last year you know I tell him all the time like you know being in high school is hard and with people it’s hard and you just like know well I know but you said this you know do you get yourself out there you only have one shot high school I regret I feel I I felt like I you know didn’t do high school right so I feel like she is actually in a way having a better high school experience of me because I might ride to give her a good advice I had a good high school experience but there’s things I wish I’ve done different you’re on the other things I’ve learned that’s how you get better in life you know you learn from your lessons you learn from your mistakes so luckily I you know I try to Gifford that you know I mean mostly what I wish I had when I was her age which you know it’s only like only four years the part but still physik forever is I wish I had that more of that don’t care attitude it’s so important at this age to do what you love and to listen to whatever music you like her and or try not to stick the mold of what you think you should be because your life is just gonna feel so much better and like it’s your ties not gonna be wasted doing things you actually don’t like to do so it’s pretty amazing to have him there just as my brother helping me through life sometimes you just snap me out of it yeah I mean she’ll set me out of a mood like a depressed mood or angry mood but like I sound very I’m a very emotional for so it doesn’t work every time you know she’s a very positive person though she’s young she’s sexy out of some things sometimes but also we do fight a lot to like any other siblings so hearing that is like wow like that’s really nice no because you know we’re not like talking about that a lot I think some people don’t think like we fight like we fight like almost every day of our lives and that stupid thing so it’s a lot that’s what I was that’s what I was saying before like you know that’s why I try to say like we’re equal like don’t think we’re any more amazing than your own kid or any like you know again I love like we love the compliments and but what I strive for is this like equality just treated us how’d you treat your your friends or you know anybody you know I mean and yeah we fighting I do horrible things we person doesn’t mean that you yeah we just fight about stupid how about that one but yeah we’re normal yummy I love my sister yeah everybody anybody fights and he’s his life or just if you had to describe your diagnosis to the world how would you explain it war what’s it weird meaning this disease is very manageable I don’t cook I don’t complain a lot why do I say war is because like I said earlier you had this management the constant manage and you know I severe anxiety so if or with that’s even worse it’s always in the be in the back your minds the medical stuff and always is then I went any social scenario at home way from home anywhere it’s always gonna be in the back of your head what are some ways I somebody affects you in every way you know it’s a part of me um but I try to distant myself from SMA a lot I don’t want people to think there’s something wrong with me so um I try not to ask for stuff there’s a lot estimating people it is very beautiful people who are disabled feel this way try not to ask too much I try you know it just some you just you you sometimes you feel like you’re a bit you’re overbearing you I mean like you’re you’re dead wait for people I feel like you do like over a sink life sometimes I do do that and I’m just like Mikey stop I don’t care about like you just have to be who you are and he’s like I’m trying to be so positive and I’m like that’s this is who I am to sleep live life I don’t like to show it but yeah there’s a lot of struggle as I go through yeah I mean mentally even more mentally physically relate to things just because we go through a lot of the same things I mean I don’t want to say all of our experiences are the same because that’s almost impossible sometimes everybody has a different life story but we relate to us so much people do I sometimes feel like they don’t think they’re gonna be like good enough if they are seen hang out with us people don’t want to be seen with us I feel like a lot unless you’re raised good or whatever um you know you’re embarrassed you know you people think that just gives me a revealer braid away that you’re you have a mental disability which isn’t true I never liked lunch at school because I haven’t had that many people to like sit with because I’m always like you know people have just like sometimes forgot about me you know which really is messed up but I think it happens for a lot of people you know they feel forgotten and then next thing you know they’re rolling out like lunch not having anybody to talk to high school lunch was exciting which exciting could be good and bad so like I was always excited to talk to people I was also nervous and very self-conscious you know I do have a French I consider her a close friend but sometimes I question that because right when I came back from school after the surgery um she never liked invited me to her table she would come over to me at my table and say hi and sit with me for like 10 minutes kind of like a 45-minute period and they go back to our table so I never um understood that and I thought you know why doesn’t she just invite me you know she kind of sees I’m alone I don’t really know anyone um you know what I also have to just say to myself like I can’t change wipe a person makes their decisions I could try to I get hope they do but you know you never know your friends right there knocking they might not gonna call you they don’t wait for someone to say no Wow come here set our table like you know I mean like that’s that’s that’s not looking arity that’s gonna happen so you know just sit you go to the table sit there and what is somebody gonna say I’ll get our money from our table if they do then you know do not your friend you know I mean I think what went through my mind the most was like why should I even take a chance at this if it like is not if this is what happened just don’t care you know I mean get that not care what anyone thinks about you you know I mean like because what made you care too much it’s it just turns into this negative and it’s like yeah cancerous stuff I don’t have that many friends but I think that’s also what I’ve learned it’s not important to have like a million a million in a million friends like it’s just so it’s not worth it because if you have one true friend who like likes hang out with you and likes to be with you and doesn’t care huit like about whatever it is that’s all that matters you’re in high school I’m a teenager right you’re you care about everything how you look what people think of you you know I mean all that snow so yeah I just try to guide her socially but anything else she’s smarter and really anything helping any other it’s in there you if someone at your school once you sit at their lunch table what do they need to do I think they need to come up to me and say hey do you want to sit here you know and that’s it what is something other people could do to help alleviate some of your mental worries what could someone do this talk it’s time that’s all yeah it’s got to people have conversation you mean like um and that’s the best thing to get your mind off of because your mind you obsess over anxiety or in whatever negative thing your mind is on but what’s you have a person in front of you especially a friend that uh those thoughts I hardly think of because you have something you’re talking to a problem like I had like last year like when people are dating like guys or whatever whatever they’re dating you know something like you know like I don’t even have a guy friend I gotta have a friend who is a guy and it’s like I should maybe I should open myself up more you know like maybe I seem shy I don’t know so I did like talk to this guy for like a day it was like one day and I was kind of like you know hopeful that maybe we can even be friends not even date but um you really shut it down and like never spoke to me again and I think that kind of you feel like am i that like bad that you can’t even like talk to me like a friend you realize the hope of life that’s not a big deal you know I mean they turned you down it stings for a second you might cringe and look back but it’s gonna hurt way more than not knowing what if what if this gonna happen you know I mean so that’s what I say you know I mean you don’t don’t have any regrets you know because I do what do you regret um we regret I cared too much about popular too much and I cringe dude I’m also I almost don’t care and I’m so much more about quality over quantity I have one friend I’m very close friend really brothers no sure I’d like to be married one day I was that like a but I definitely don’t think about it a lot and when that one thing did happen I just kind of was upset for a while and said I don’t understand like am i that dad but like then I realize no no and this guy just his mind is not open enough to trying new things or making new friends and that’s that’s on his end really close I always said no her like the back of my hand oh my I can tell on munchies I like what he says this but I asked him don’t because he tried to say that he knows everything that’s going on in my mind everything that’s why I miss a few that’s what I message you okay I know a lot what she’s thinking like no bite they won’t like what look at each other I would like in this situation like what to say something crazy happen we’d be like you got me like right away boom now it’s like me never really clearly think a lot like really alike we think I liked a lot but I definitely gets how we have difference there’s a bad certain thing we’re very different we are very different very different but I still feel really close family come on it’s almost like a twin ding like I know I know how she feels when she said when she’s happy whatever like yeah yeah don’t you say oh my god it’s a dream I’m never gonna be able to do it try to do it and what’s worse is never trying to me then failing it what’s worse is never trying because if you never tried then you you’ll never know if you failed or succeeded like you know so I think that’s my advice for the world thanks for watching if you appreciate what we’re doing and want to see SBS K grow make sure to like comment and subscribe this will help us reach even more people and make the world a better place thank you yeah we’re it seemed like all of you you know mean just had some hurdles that other people may not have to go through

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